Mark's Blog

Linda,
You may want to consider trying Ezekiel Bread, made from various sprouted grains. No oil, no sugar (ever noticed most breads have partially hydrogenated oiils (margarine) which is a BIG no no, and corn syrup? Sick!). It is very dense, rich, and yummy!! I can't remember the name of the company that makes it. I find it in the freezer at my local HFS, but if you have a Kroger's in your town, I hear they have started carrying it too (again in the frozen foods section...because of the lack of preservatives, Ezekiel Bread will spoil quickly unless kept in the freezer).

Mindy

Linda,
Wow, I don't think I realized that you had first heard about Wilson's from a *doctor*...how rare and wonderful!! :)

Mindy
P.S. I think you should save your general Wilson's info in a file to copy & paste every time someone asks about it, just so you don't have to retype over and over...!!

Thanks, Linda.
You've given me alot of info. All the veggies you listed are ones I
eat alot of, so maybe that's why I am worse this year. I've been told
to eliminate dairy and grains, so there aren't many things left to
eat. Except for meat, which is my least favorite food, of course. I'm
going to look into the NAET too.
Thanks,
Bernadette

In a message dated 01/15/2002 9:25:29 AM Pacific Standard Time, wendysantee@... writes:

Linda, you listed all the veggies I like.

LOL! Wouldn't you know! Yep, I miss eating broccoli and cauliflower, too! 'Course, they may not bother you and your thyroid. You could experiment with going off them for awhile to see if you notice a difference.

Course I have to tell you I keep forgetting to take my
meds..It's just not that easy ya know.
Does anyone out there never forget their meds? What
type of routine do you use?

When I was on traditional synthroid/cytomel, my doc at the time told me it needed to be taken on an empty stomach, an hour and a half away from food. Since I didn't want to take it late at night before bed, I used to put one dose of my medicine at my bedside along with a glass of water. Then, I took my medicine as soon as I woke up in the morning, every morning, waiting for the required time before eating.
The Wilson's treatment I'm doing now requires a strict dosing schedule every 12 hours. For that, I bought a wristwatch with an alarm. That works the best for me and I hardly ever miss a dose of medicine.
Linda in LA
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey

Linda, you listed all the veggies I like. I started
this steaming craze that is what I am doing with
everything. (even Chicken) I have felt more alert and
awake...
Course I have to tell you I keep forgetting to take my
meds..It's just not that easy ya know.
Does anyone out there never forget their meds? What
type of routine do you use?

Well the worse thing that could happen in not taking
medicine is a coma.
Make an appointment. :} You will be glad you did.
I have never tried really anything alternative,
because most "alternative" therapys have never been
proven.
I have been on synthroid for 13 years or so.

Thanks for the article, Agnes. I bet if they'd used LA in the study they'd
have seen something a bit different. It is my understanding that LA uses
ozone to treat their water supply system. Costs less than Chlorine and
doesn't hurt people. Guess I'd better send this to the ozone therapy list.
SaraLou

Hi,
I have been having a problem with extreme cold intolerance and
believe I am hypothyroid. My other symptoms are fatigue, memory
problems and dry skin. Also I am having trouble losing 5 pounds. I am
reluctant to make a doctor's appointment because I am not sure I want
to go on thryoid hormones.
I need to try something because I can't stand being so cold and tired
all the time. Are there any supplements or herbs I can take? Has
anyone tried accupuncture?
I should mention that I am insulin resistant and allergic to
chemicals: antibiotics, black dye used in clothing, cigarette smoke,
perfumes, cleaning products etc. My cholesterol is also high but it
has come down to 204 since I stopped being a vegetarian and I am now
on a high protein diet with lots of veggies.
I would appreciate any suggestions you can give me.
Thanks,
Bernadette

Thyroid Toxin Taints Water Supplies for Millions in Calif. & Nationwide
Air Force, Defense Firms Lobby Against Standards for Rocket Fuel Waste
http://www.ewg.org/reports/rocketscience/
Rocket Science
OAKLAND, Calif., July 16 - Sources of drinking water for more than 7
million Californians and unknown millions of other Americans are
contaminated with a chemical that disrupts child development and may cause
thyroid cancer, but is unregulated by the state or federal government,
according to an investigation by Environmental Working Group (EWG).
Today EWG released "Rocket Science: Perchlorate and the Toxic Legacy of the
Cold War," available at www.ewg.org. Perchlorate, the explosive main
ingredient of missile and rocket fuel, has been detected in 58 California
public water systems and in water or soil in 17 other states.
Citing EWG's study, The Sacramento Bee reported in a front-page story July
14 that the U.S. Environmental Protection Agency estimates 20 million
people in California, Arizona and Nevada have some level of perchlorate,
often undetectable, in their drinking water supplies.
But only a fraction of the water supplies in California or elsewhere have
been tested, and the EPA believes perchlorate contaminates water wherever
rocket fuel or rockets were made or tested - 39 states in all. "Rocket
Science" makes public for the first time maps and databases of all known
and suspected perchlorate contamination nationwide.
"We know the water supplies of millions of Californians are contaminated
with perchlorate at potentially harmful levels," said Bill Walker, EWG's
California director. "But that's just the tip of the iceberg. There are
hundreds of untested wells and water systems across the country, and many
Americans may be consuming a toxin which is a health threat at very low
doses, especially to infants and children."
Too much perchlorate can damage the thyroid gland, which controls growth,
development and metabolism. Fetuses, infants and children with thyroid
damage may suffer mental retardation, loss of hearing and speech, or
deficits in motor skills. At higher levels of exposure, perchlorate is
known to cause cancer.
Neither California nor the EPA has established any safety standards for
perchlorate in drinking water. The EPA is scheduled to begin nationwide
water sampling this year, but it will be years before there are enforceable
state or federal drinking water standards.
But it's unlikely that those standards will protect the public,
particularly children. EWG calculates that the EPA's latest proposed
standard would leave formula-fed infants exposed to between 7.5 and 2,000
times the safe level of perchlorate in drinking water.
EWG's recommendations for a perchlorate standard that will protect children
were reviewed by Dr. Thomas Zoeller of the University of Massachusetts, an
external peer reviewer of the EPA's proposed perchlorate regulations.
Zoeller told The Bee that EWG "makes a scientifically valid case." He
agreed with EWG's main finding: The EPA's risk assessment does not consider
the possibility that infants and fetuses may be more sensitive to
reductions in thyroid hormones caused by perchlorate contamination.
"Small, subtle changes in thyroid hormone levels in pregnant woman can
predispose their children to measureable and permanent reductions in IQ and
to Attention Deficit Disorder," Zoeller said.
But concerted pressure to set a looser perchlorate standard is coming from
a powerful alliance of chemical companies, aerospace contractors and the
U.S. Air Force. In an unethical attempt to prove perchlorate is safe, the
Air Force is co-sponsoring tests in which human subjects are paid to
swallow daily doses of perchlorate much higher than the levels currently
recommended by EPA or California.
"In the name of national security the military created a widespread public
health threat. Now they're trying to block safety standards that would
protect people from that threat," said Walker. "It's clearly not in the
public interest for the Air Force to be lobbying against EPA's efforts to
set safety standards."
If standards are kept lax, the defense contractors responsible for
perchlorate contamination will save millions of dollars in cleanup costs.
Some contractors have already cut deals with the Air Force that will stick
taxpayers with almost 90 percent of the cleanup bill. With cleanup of
heavily contaminated sites estimated to take more than 200 years, the cost
to taxpayers may reach billions of dollars.

Consider the Source
Farm runoff, chlorination byproducts, and human health
http://www.ewg.org/reports/ConsiderTheSource/index.html
Farm runoff, chlorination byproducts, and human health
FIRST-EVER NATIONWIDE ASSESSMENT OF CHLORINATION BYPRODUCTS IN TAPWATER
FINDS 137,000 U.S. PREGNANCIES AT HIGHER RISK OF MISCARRIAGE, BIRTH DEFECTS
Washington- The first ever nationwide assessment of chlorination byproducts
in drinking water, released by the Environmental Working Group (EWG) and
U.S. Public Interest Research Group (U.S. PIRG), shows that more than one
hundred thousand women are at elevated risk of miscarriage or of having
children with birth defects because of chlorination byproducts (CBPs) in
municipal tap water. CBPs are formed when chlorine reacts with organic
material in the water. The Maryland Suburbs of Washington, DC lead the list
for the number of pregnancies at risk in individual communities or water
systems, while Texas tops the list for number of pregnancies at risk
statewide.
Chlorine is added to tap water to kill microbes. But chlorine also reacts
with organic matter, including sewage, animal waste, and soil and plant
material that comes from run-off caused by agriculture and urban sprawl to
form harmful CBPs. At least ten major peer-reviewed epidemiological studies
have shown elevated risks of birth defects and miscarriages for women
drinking chlorinated tap water. In addition, the U.S. EPA has estimated
that CBPs cause up to 9,300 cases of bladder cancer nationwide every year.
The report estimates that from 1996 though 2001, more than 16 million
people in 1,258 communities were served water contaminated with CBPs for at
least 12 months at levels higher than a new legal limit that took effect
January 1st. A handful of large cities put the greatest number of people at
risk Ð Washington, DC suburbs, Philadelphia, Pittsburgh suburbs, and San
Francisco, but more than 1,100 small water systems also reported
potentially dangerous contaminant levels. The highest levels of CBPs, from
five to 10 times the level allowed by the new standard, were reported by
small rural drinking water utilities.
"Dirty source water going into the treatment plant means water contaminated
with chlorination byproducts coming out of your tap," said Jane Houlihan,
EWG's Research Director. "The solution is cleaning up our lakes, rivers,
and streams, not just bombarding our water supply with chlorine."
EWG and U.S. PIRG called for immediate action to clean up the lakes and
rivers that provide tap water by reducing the soil erosion and the nutrient
and animal waste runoff from farms that increase the need for chlorination.
The groups also recommended a more ambitious effort to address the
long-term health threats of chlorination byproducts. The Farm Bill
currently being debated in Congress is an opportunity to fund farmland
conservation programs that could protect waterways, curb sprawl, and clean
up America's tap water.
The groups also recommend the creation of a nationwide health-tracking
network, coordinated by the Centers for Disease Control and Prevention
(CDC). The network would monitor Americans' exposure to pollution and would
track birth defects, miscarriages, and other diseases linked to pollution,
like cancer and asthma. "One of the main reasons health standards are so
weak is that neither state nor federal health authorities adequately track
miscarriages, birth defects and a host of other diseases where pollution is
a suspected cause," said Jeremiah Bauman of U.S. PIRG. In December,
Congress appropriated $17.5 million dollars for pilot environmental health
tracking projects.
In the meantime, there are some simple steps that pregnant women can take
to reduce the risks posed by chlorination byproducts. "First, pregnant
women should drink plenty of water," said Houlihan. "To reduce exposure to
CBPs use a carbon filter, especially in the summer, when CBP levels tend to
spike. Pregnant women also might want to switch to non-chlorinated bottled
water. And, they should take shorter showers and baths, since CBPs can be
inhaled or absorbed through the skin," Houlihan added.

Hi dezign,

One size does not fit all when it comes to thyroid meds. You may have to try a few before you find one that works for you. It could take awhile. An NEJM study has shown that
patients tend to do better on medication containing T3. You may need that.

It's not a good idea to use mineral oil (can leech important vitamins such as K and E)...so if i were you, I would use either cocoa butter lotion or even make a trip to your local health food store and get some almond oil.

Mindy

Hi!
Give or take a two month period -or until they
regulate your thyroid.
Yes! There is A LOT to this disease and it does effect
EVERYTHING in your whole life. I guess that is why I
had to join this board, because you can talk to other
people who have your disease and be releaved that
"Hey! Its not ONLY ME that feels this way"
Not that feeling depressed or loss of sexual desire or
having hair falling out is fun. Its just nice to know
that it isn't in your head.
You should take the pills and slowly get better. I am
at work right now, but I have a great thyroid book at
home and one on Womens bodies that has helped.
Welcome!
Wendy

Jill,
My endo said antibodies CAN fluctuate. ;)
Love,
Reneé and Jerry
rja86@...

Hello,
I'm a 28yo female and was recently diagnosed with hypothyroidism. I
have had the symptoms for years and had actually read a book
called "Smart Drugs" a couple of years ago and went to my doctor and
asked them to test me for it but it came back normal. I don't know
if it was my doctor or just difficult to detect but recently when I
had the test my test was below normal. I don't know much about
curing this illness and was hoping to get some advice. My doctor put
me on a drug called Levoxyl and said in two to three weeks I should
feel better. I have no energy and am really depressed and I can't
really afford to feel this way anymore because it is affecting every
single aspect of my life in a negative way. Should I be hopeful that
in a few weeks I will feel better or is there more to this illness
then my doctor has told me?

Hello again,
Has anyone else lost skin pigmentation in relation to
hypothyroidism. I have these white dry blotches on my upper arms.
Thanks.

Has anyone ever tested negatvie for the antibodies and then later as
the symptoms progressed, tested positive?
My new endo said since I tested negative years ago, there is no
possible way I could be positive now.
Any ideas on this?
thanks!
Jill

I usually put mine in a warm bath and soak for a while. Baby Oil-the store generic is usually Mineral Oil, there are no "higher" grades or better quaility of mineral oil..it just is.

Wendy

Hi Anita,
How do you use the mineral oil?
Thanks!!!!
Liz
------
Don't forget you can order Mineral Oil very cheap at a Vet supply place
where
they sell things for horses...
I just ordered a gallon for $8.50!
You can also order Epsom salts at the same kind of business in bulk and
cheap.
That helps with the ache of joints and bones.
Smiling,
Anita~

Don't forget you can order Mineral Oil very cheap at a Vet supply place where
they sell things for horses...
I just ordered a gallon for $8.50!
You can also order Epson salts at the same kind of business in bulk and cheap.
That helps with the ache of joints and bones.
Smiling,
Anita~
In a message dated 1/8/2002 7:58:04 AM, wendysantee@... writes:
<< Well there are two things I have started to do, take a
bath with mineral oil...next step is placing vasoline
on my feet at night so I can fix those dry cracked
heals...
Wendy
So far it is working!!!! But I also am drinking the
8-10 glasses of water a day!

Hi Everyone,
I just wanted to thank all of you for your imput on my dry skin.
Love, Liz
----

Here's an interesting link to a site by Dr. Ron Kennedy in Santa Rosa, CA.
It's about Reverse T3 dominance and how adrenal dysfunction affects thyroid
metabolism. Interesting diagrams, too.
http://www.medical-library.net/sites/wilson%27s_syndrome.html
Linda
"We are each responsible for our own life--no other person is or even *can*
be." Oprah Winfrey

In a message dated 01/09/2002 4:27:21 AM Pacific Standard Time, grinberg17@... writes:

Does anyone know of any good
physicians close to Stamford, CT? Stamford is in Southwestern, CT,
near Westchester County, NY. The Wilson's site was not really able
to help me. It gave me one doctor in Westchester, but I called her
and have received no response.

Hi,
I checked the American Preventive Medical Association referral site. Here's the list they have for CT:
Dr. Alan R. Cohen, M.D., B.C.D., H.H.P.
HARMONY HEALTH CARE
Milford, CT
Phone: (203) 877-1936
Dr. Jerrold N. Finnie, B.C.D., M.D.
Torrington, CT
Phone: (860) 489-8977
Dr. Bernie Siegel, M.D.
Woodbridge, CT
Phone: (203) 387-6633
Dr. Henry C. Sobo, M.D.
OPTIMAL HEALTH MEDICAL LLC
Stanford, CT 06905Phone: (203)348-8805
Dr. George P. Zabrecky, M.D., Ph.D, D.C.
Richfield, CT
Phone: (203) 894-8370
I hope one of these guys might be open to hearing your interest in WTS and working with you. The Wilson's organization has an information kit you can order to take to a doctor whom you think might work with you.
Another way you might be able to find a doctor who will do the Wilson's protocol would be to look up any compounding pharmacy in your area. That's where a doctor who does the WTS procedure would have to go to get the T3 compounded with the time-release agent. If the pharmacy does the work, they could give you the name of the doctor(s) who order it.
Also, here's the link for the APMA's referral website so you can check the listings in NY state for doctors. The list is so long it would be pages on this email!
http://www.healthy.net/asp/Associations/assocsearch.asp?AssocId=31
Good luck!
Linda in LA
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey

Thank you again, Linda, for the APMA reference. The problem is that
I don't want to just pick a random doctor. Ideally, I would want to
go to a doctor that already is familiar with Wilson's. So, I tried
contacting another doctor from the Wilson's site. This doctor was a
bit far, but I figured it would be worth it. I got in contact with
her, and asked about my insurance. The receptionist said that I
would have to pay in advance, then send the bill in to my insurance
(if my insurance would cover it). The fee would be $325 for the
initial visit, and then $115 for the followup. I contacted my
insurance, and this doctor was not covered. I was confused at this
whole situation. So, I decided to see if any more of the doctors at
the Wilson's site were covered, and I am having trouble finding one.
So, I called my primary physician back. He had previously told me
that he would refer me to an endocrinologist. I figured this would
have to be my best route. I reached my physician, and I asked him if
he was familiar with Wilson's. He said there were many forms of
hypothyroidism. I told him about my low body temperature and how
this is the primary sign of Wilson's. He asked if I took my
temperature orally or rectally. I told him orally, and he said that
rectally would probably be more accurate. I could already tell he's
not being that supportive. But, he said that diagnosing any type of
hypothyroidism would require extensive testing, and he recommended an
endocrinologist for me (who I was happy to discover was covered by my
insurance). However, after reading the Wilson's literature, it seems
that "extensive testing" is not the way it's diagnosed. In fact, it
doesn't show up in tests. (If I am mistaken, please correct me).
So, I'm concerned that this endocrinologist will be a waste of time,
but I figure it's my best bet right now. I wish I could just find a
doctor who is familiar with Wilson's that is covered under my
insurance. Any thoughts would be greatly appreciated. Thanks
again.

Hi. I posted not too long ago. I feel I have Wilson's Thyroids
Syndrome and am in the process of finding a physician to help me.
But, I'm having a lot of difficulty. Does anyone know of any good
physicians close to Stamford, CT? Stamford is in Southwestern, CT,
near Westchester County, NY. The Wilson's site was not really able
to help me. It gave me one doctor in Westchester, but I called her
and have received no response. Any assistance would be great.
Thanks.

Are you only taking T3?
Amber
you wrote:
He switched

Good Morning everyone!
My name is Amber, 29, live in MN. I've been lurking on this board for
awhile. My initial TSH was 8, and my follow up was 4.5.
Before I went to my follow up I frantically searched the internet
about
Thyroid, and decided I wanted to be put on Armour. It works great,
and it
brought my levels down some, and my energy has improved, but it could
be
better. However, the doctor took by T4 & T3 tests the second time,
and my T3
was up to 120. She does not want to increase my Armour percription
because
she doesn't want my T3s to get any higher. I know I read somewhere
that if
you take 1/2 doses at differant times of the day, you can keep the t3
levels
down since they have a shorter life, but that has really become a
hassle.
( I thought if I took my dose at half a time it would bring my T3 down
enough to encourage her to bump up my dose.) Half the time I forget.
I'm
thinking I probably don't need Armour because my body is making
enough T3. I
think I'm going to ask her to Switch me to a T4 only percription and
if I
need T3, then add it in.
What are your thoughts on this? Has anyone switched meds. because of
this
reason? How hard is it to switch?
The thought of more energy at a TSH level of 1-2 is so alluring- I
really
want to see if it works for me. It would be heaven.
My Dr. has been pretty good so far. Very open to what i'm learning.
*** Also, How many of you take Maca and for how long? any other
herbals?
*** Ayone tried Mayte tea for energy? (It was suggestd in Mary Shomons
book.)
*** How about the new Sugar Busters book?? anyone tried it?
Well, that's enough for now!
Amber

One more question. When you guys overdose on your thyroid med., what
symptoms do you have? My upper lip feels sort of tingly like it wants
to go numb, but not really. Almost a circulation thing. I'm not sure
how to describe it. Anyone else had this happen? I don't think my
numbers could be less than 4 or 3 at the most, but I don't know for
sure.)
Thanks, Amber

In a message dated 01/08/2002 11:14:21 AM Pacific Standard Time, wendysantee@... writes:

I guess living in Memphis I must be back a few decades
what is Cytomel!!!!

Wendy,
LOL! Cytomel is traditional liothyronine, i.e., T3. It is instant release, goes into the system quickly and get used up by the cells in around three hours.
Linda
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey

I guess living in Memphis I must be back a few decades
what is Cytomel!!!!

In a message dated 01/08/2002 7:31:21 AM Pacific Standard Time, breiff@... writes:

I am about 2 seconds away from
ordering Cytomel form an out of country pharmacy just to get rid of
this weight and to feel a bit better.

Beate,
I know how you feel! I spent most of one day online several months ago looking for a drug company in Mexico where I could get Cytomel! LOL! In the end, I decided to change to a doctor more in the wholistic field. He hates synthroid! And wasn't even very happy with the Armour I was on! He switched me to pure T3 with a timed release agent and I've been much happier. I have lost about five pounds without dieting or changing what I eat. But better than that, I'm starting to feel WELL! I think I can live with the weight (I, like you was 130 for most of my life until my mid 40s when I went up to 170 and couldn't get down! Eeek!), if I'm starting to feel like I can think again and have energy ('course if I have energy I might feel like taking a walk and then, the weight might fall off even more!) and feel cheery.
I was on a synthroid/cytomel combo w/ my first endo early last year and I was sneaking extra cytomel above what he precribed for me b/c it helped me feel like I was human again. Sane. Energetic. Clear minded. But it came at an awful price for me. It gave me ghastly heartburn and heart racing. The time release stuff I take now does none of that (It's a clever blend! You get the best of the T3 slowed down over 12 hours. Still people w/ heart problems are advised to not risk it.).
If you want more info, you can email me privately. Good luck!
Linda in LA
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey

Well there are two things I have started to do, take a
bath with mineral oil...next step is placing vasoline
on my feet at night so I can fix those dry cracked
heals...
Wendy
So far it is working!!!! But I also am drinking the
8-10 glasses of water a day!

Hello everyone,
I am new to this board and 6 month into thyroid treatment... and I
need a shoulder!
I started off with every symptom of hypo and tested with a 149 TSH.
My doctor thought at first that I had Rumatoid Arthritis due to my
high RA test and extreme symtoms.
Now my TSH is still at 14.9 and droping very slowly. I am on 112 mcg
of Levoxil this month. I am so moody that I am driving my husband
insane and little disagreements with my teenage son push me to near
nervous breakdown and tears. I have gone from (5'6) 130lbs to 160lbs
and now slow down in sight. I consume an average of 1400 cal / low
carbs a day and do some excercise but it hurts inside the joint.
My doctor thinks it's not time (whatever that means) to perscribe
Cytomel or a T$/T3 combo medication. I am about 2 seconds away from
ordering Cytomel form an out of country pharmacy just to get rid of
this weight and to feel a bit better.
Sometimes I just think I am loosing my mind...... Thanks for
listening ;-0
Beate

Hi Everyone,
I've read that very dry skin can be a part of thyroid problems. My hands
are so dry and lotion does nothing for them. Have any of you tried
anything that really helped your skin?
Thanks!!!
Liz

Beth,

I am relatively new to the problem of hypothyroidism, about 4 months, but will offer some suggestions to you. I have symptoms similar to yours including a basal temp in the 96 range. Listening on this list and researching has disclosed two possibilities for me - thytrophin and maca root.

I get a monthly newsletter from a Doctor West who talks much about hypo, its symptoms and how to treat it. West is all natural and does not use synthetics like synthroid as after 1-2 years of use they stop the thyroid's ability to make hormones, according to him. He recommends Thytrophin (3-6/day an extract of the thyroid gland) coupled with Cataplex F (3-6/day containing vitamin F, B6, iodine, liver fat extract, calcium lactate, flaxseed oil extract, and more, not recommended if you are allergic to iodine). You can get these natural products from Standard Process 800-231-8063, less than $70 for a 3 month supply at 3/day each. (I don't know about shipping to the UK.) From a google search for "Standard Process" I got numerous sites selling their products as well as the Standard Process Inc. homesite. I have these products and am about to start using them.

The second possiblity is Maca Root . Jon Geng on this list wrote in part -

" At first I found thytrophin (thryoid without the hormones, by Standard Process) and food grade iodine, which I took faithfully and I started to feel better, but when someone told me about Maca, I looked on the "Whole World Botanicals" website: www.WholeWorldBotanicals.com and read about organic "Royal Maca". I called their number;
1 888 757 6026 and talked to Dr. Viana Muller. Now I have been taking organic Maca for over three months,
about 2 tblsp. per day... I take it in small doses throughout the day. They have capsules too and this
may be more convenient for some people."

My wife had a mild case of hypo and seems to have gotten rid of it by painting a patch of iodine on her stomach twice a day for a month or so until it stopped disappearing so quickly, less than 24 hours.

Hope this helps, Ben

Thanks,
Actually I saw Dr. Patel in the same office as Dr.
Kelijaman. I wonder if there is a difference with the
doctors. they are in the same group.
Also, I would rather not go off of the birth control
pills right now. It has also seemed to help a lot
with my cycle as it wasn't always quite normal.
Besides, that still doesn't explain why my TSH was so
high at 3.32.
Well, the doctor was supposed to do a blood test today
that will basically tell if the T-3 is low b/c of the
pill or just low b/c of my body. I'll see what
happens.
Thanks,
Jill

Oh, I'm not near Clevland, I live in Florida so if anyone knows of
anyone down here that would be great.

Jill,

I'm in a support group for my buisness with people all across the country (USA) I asked them the following question and got the following answers.

Tammy

Hi Wendy,
Thanks for your reply.
I have dry, flaky skin, my hair clogs up the plughole when I shower
(it used to be so thick and healthy), I have been diagnosed as having
depression (prescribed Prozac but not taken it as yet), my basal body
temperature is low (around 96.5 degress F), I get constipated (never
happened before), I have strange sensations in my neck and throat,
difficulty swallowing and sometimes breathing, I get pins and needles
in my hands, my ankles swell, I have muscular and joint pain, my
mental capabilities have got on a plane and flown away and my
menstrual cycle is all screwed up (not caused by the menopause, my
FSH levels are normal). Phew!
There is a family history of both diabetes and hypothyroidism. My
father and both his brother and sister were all diabetic (diabetes
mellitus), as is my aunt's daughter, but I'm not sure if there is any
connection.
Regards,
Beth.

Hi Beth,
When I was first diagnoised with Hypothyroidism I had
gained 40 pounds in a two week period and look
bloated.
(Actually I still look bloated but my daughters say
you are not fat mummy you are fluffy)
Now 12 years into the disease and being diagnosed with
Diabetes I decided I AM going to make a healthy
lifestyle..One week now I stopped drinking soda pop,
and started to steam more veggies and layed off the
fried foods. Do you know I feel great so far- I wake
up at 5 in the morning with no problm.
What other symptoms do you have? Dried skin? Hairloss?
Moodiness?
Wendy
--- silkytigress69uk <silkytigress69uk@...

Dear All,
I'm an (as yet) undiagnosed hypo patient living in the UK, and I'm
hoping for some ideas/suggestions/tips on how to obtain medical help.
I've been feeling really sick for 3 years now, and probably a lot
longer when I think back. Anyway to cut a very long story short my
GP ran a TSH test almost 12 months ago now. The result came back at
2.25 (0.5 - 5.0) which he said was normal, and despite my apparently
normal TSH reading, given the symptoms that I have, referred me to an
endo at the hospital. I waited 10 months for an appointment which,
quite frankly, was a total waste of time.
Firstly the doc that I had the appointment with was mysteriously
called away to a "meeting", so wasn't even in the building, much less
attending his clinic. That annoyed me in the first place as I'd
expected the initial meeting to be with the big cheese at least!
The 'gentleman' I did see looked at my test results that my GP had
sent when he requested the referral and said basically that the test
results were normal and what was I doing there! I gave him a list of
my symptoms which I'd written down to be on the safe side as I've
trouble remembering things, and he took a cursory look through them
then returned them to me and basically tried to tell me to go away! I
pointed out that my symptoms had grown worse since then and that
shouldn't he at least take some more blood tests? This he agreed to
do.
I then had a female doctor come in on the consultation and she
proceeded to tell me that putting on weight in 'middle age' is
common. I'm 42, I said, and 6 stones is not what I would call middle
age spread! Her reply was to say I should see the dietician as there
must be something wrong with my eating habits, (there may well be,
but it's lack of food if anything, not overeating, as I have so
little appetite). However, I agreed to this, to prove a point if
nothing else (appointment 13th February). I will follow whatever they
tell me to do to the letter and see what happens.
By this time I was feeling angry, upset and so frustrated. They then
decided to take my blood pressure and pulse.......needless to say
they were high....160/90 and 100 b.p.m respectively....hardly
surprising really taking everything into consideration.
The upshot of it all is basically this: I had to have the bloodwork
drawn at my GP's practise.....couldn't get an appointment for that
for over a week.....but if the results are similar to the last ones
the hospital will not see me again and I'll just have to put up with
it! Charming, eh? The blood tests requested are for Renal,
Cholesterol, Diabetes, TSH, FT4 and for female hormone levels.
Still waiting on those results, almost a month later! The joys of it
all eh?
My husband is completely fed up with me, and gets annoyed when I keep
looking on the internet for information about thyroid disease. He
too thinks I should just accept that the results of my tests are
normal and get on with a diet and exercise regime! He simply doesn't
understand the bone numbing fatigue which makes even walking about a
nightmare for me.
Anything that anyone can suggest will be very welcome.
Thanks to you all for listening!
Regards,
Beth.

I am ignorant. What is GH releaser?
Ann

I have heard Dr Lowe speak about hypothyroidism as a major
cause of what is usually diagnosed as fibromyalgia. I believe that he
has spent more time researching and he has written a huge medical
text on the subject. I also believe that his hypotheses is more
accurate and detailed than Dr Wilson's.
http://www.drlowe.com The treatment is similar. There is days
worth of reading on his site.
--
anomie
"I would much rather be some ones fun, well used toy than to be an
expensive, impressive collection that they just have to dust"
Winter Solstice 2001
NAMTPT web site
http://www.myofascialtherapy.org

An earlier post talked about Maca Root as very helpful for
hypothyroid. It is often marketed as an aphrodisiac or sexual
enhancer, but I've read that it is effective on the endocrine system.
Anyone know anything about this?
Thanks,
Ari
p.s. I continue to be impressed with peoples' knowledge and
willingness to share it. Thanks

Hi,
I meant to write yesterday but I had trouble logging
on. The visit with the Doctor was HORRIBLE!! I feel
so depressed and upset now after that visit.
Basically she thinks that my thyroid is fine and that
I am just fat or obese. She wants me to go on a
strict diet and exercise everyday and she will see me
in two months. If that doesn't work than she is going
to put me on a diet pill. Great. That just causes
more problems.
I know that I am over weght. I could lose about 40-50
lbs but I have always had a weight problem but now I
have gained 20 pounds in less than a year. Usually I
am abou 25 lbs overweight and gain between 5-10 lbs or
lose it within each year.
I'm so upset. I didn't go there about my weight. I
went b/c of all of my other symptoms. She said that
the T-3 uptake and the thyroid uptake scan are low b/c
of my birthcontrol pill. Have you ever heard that?
But, that still doesn't explain why my TSH is 3.32 now
and climbing. She said that it is normal.
She also felt my thryoid/goiter and says that it is
enlarged and swollen but that it is a "soft" goiter.
What does that mean?
She also said that since I got tested for the
antibodies two years ago, and they had come up
negative, then I will NEVER test positive for them. I
don't kknow if this is true. Is that the case? That
your body is basically born with the anitbodies and
you can never build them up in your body as the
"disease" progresses? I am not sure about that but it
doesn't sound right.
So, overall I'm not happy. She also thinks maybe I
have diabeites but my blood fasting glucose is
perfect. She said that maybe I can't handle sugar but
fasting I can. Crap. She said for someone so "obese"
I have to worry about these things more. I felt so
humiliated and put down. No doctor has ever been so
concerned with my weight. Yes, now I am a bit over
weight (more than ever) but that's not my complaint. I
had planned on eating healthier and stuff but as for
the energy, I have none so how am I supposed to
exercise every day? Well, I am going to get my blood
tested monday and then probably will need to find
another doctor. I'm in south florida. Anyone know of
a good doctor to go to?
Thanks,
Jill

Hun, I think you need to find a doctor who studied this in college or at the least one who understands what you are going through. My doctor does the same thing with me, and wants to load me up with pills and call me depressed. I am concerned about my health as you are,and we don't deserve this kinda of treatment. Also just because the antibodies weren't there doesn't mean they won't be- I was tested a month prior to getting the actual disease and there was nothing to indicate I had or will ever have the disease. But sure enough three months later, I was full blown hypo. I also have a swollen thryroid, but my doc thinks nothing of it. I had to make them take ct scans and xrays but they swear that it's still ok. I'm in NYC but I am sure, there are people here who can recommend one in FL and even if they don't live there, we can find you a good one! :) Don't worry we'll get through this.

Love Ya!

Kristina

From: John Geng <molokai_duo@...
Subject: Re: Hello, I'm new and have some questions!
This may not be an answer to your question, but I have
had incredible success with Maca, a Peruvian root.
After taking it for about three months, I feel so much
better... I have much more energy.

Hello,
I'm new to this list, and was only diagnosed with hypothyroidism one year ago. I am taking synthroid now, but would love to find a natural alternative.
I have never heard of Maca root, but I am intrigued by your post. I would appreciate it if you would expand on your experience with Maca root, including dosages, etc. I'm due to have my hormone levels checked in 2 weeks, so I'm not going to list my levels at this time, because I know they have changed. However, I'd like to go into the doctor's office armed with as much information as possible.
Any other information about natural alternatives to synthroid (from anyone on this list) will be greatly appreciated. If this has been discussed before, feel free to e-mail me off-list.
Thank you,
Diana
logandi@...

My husband was first diagnosed with hypothyroidism and
the doctor put him on synthroid. I strongly feel that
we should try alternative methods, but my husband is
often too impatient to wait for results by alternative
treatments. I understand that he wanted to feel good
quickly, of course... A short time after he was
diagnosed, I started to feel dizzy, fell down
frequently, lost almost all my energy, my hair fell
out and I started to gain weight. The doctor wanted
to put me on synthroid right away and told me the
impossibility of alternative treatments, because I was
"too far gone". At first I found thytrophin (thryoid
without the hormones, by Standard Process) and food
grade iodine, which I took faithfully and I started
to feel better, but when someone told me about Maca, I
looked on the "Whole World Botanicals" website:
www.WholeWorldBotanicals.com and read about organic
"Royal Maca". I called their number;
1 888 757 6026 and talked to Dr. Viana Muller. Now I
have been taking organic Maca for over three months,
about 2 tblsp. per day... I take it in small doses
throughout the day. They have capsules too and this
may be more convenient for some people. I do have to
add, though, that I have also been doing Dr. Clark's
colon cleanse and her kidney cleanse for about two
months now and this probably helped also the way I
feel now: As I wrote in my other short message, I
feel stronger, have very much energy, lost about 15
pounds and got my hair back.. To compare myself now
with my husband or my brother, both of them on
hormones, I definitely feel better than they do and I
was in much worse condition (not only because of my
thyroid)
An alternative doctor told me some time ago that after
two years of taking hormones, the thyroid stops
producing its own.
I hope that you call Dr. Viana Muller and ask her what
she thinks. She is very, very nice. I do hope that
you'll be as successful as I am.
Ingrid

I have heard allot of talk about 1200mg of L-Lysine and 1200 mg of
L-Arginine when taken together are a potent GH releaser. Does anyone have
any factual personal experience on this?
Thanks
Manoj

Karen,
Thanks so much. I printed the article out and am going to bring it
with me. For about 2 years it seems that my TSH has never gotten
below 2. Now it is getting higher. Does it matter if you fast for
only 8 hours before your blood test or should you eat light for a
whole day before the test? Just wondering if that could be a
difference.
Thanks,
Jill

http://mobile.msn.com

that's sooo weird - I just ordered it!

Althought this makes me sad (I love tea, esp. green tea), but felt the need
to pass it on.
http://www.mercola.com/2000/sept/10/green_tea_fluoride_thyroid.htm

Everyone, please do yourself a favour and pick up a copy of "Solved: The Riddle of Illness" by Stephen Langer, MD. It goes into detail about why the lab tests are unreliable, how to measure your basal temperature, why natural thyroid works better for many people, and how to supplement your thyroid medication with nutrition for optimum health. A real eye-opener.

Jill,
Maybe you could bring research with you stating that many dr's now believe
that a TSH betweeb 1-2 is optimal. I know I found it on the internet. Try
http://infertility.about.com/library/weekly/aa060599.htm
Mary Shomon's site has some good info as well www.thyroid.about.com. Good
luck - remember that you know your body best and don't give up. It may mean
searching for the one dr. that will listen. It can be done :)
Karen - Boston

Hi,
I am new and I have some questions. I have been having symptoms of
what seems to be hypothyroidism but unfortunatly my doctors keep
telling me that I'm normal b/c my lab results for the most part are
normal! But, I have also done some research on T-3 and TSH and my
levels right now seem borderline. My TSH is 3.32 and my T-3 is 23.
I also just got results in hand from a previous Throid uptake scan
(over a year ago) which showed low uptake of 3.7% after 4 hours and
14.5% after 24 hours and around the same time I had blood results
saying everything was fine except my T-3 was only 20. (low)
I went to an endocrinologist on the recommendation of my general
doctor but she said that I am not that bad yet and I should just wait
and see. But, my blood tests keep showing fairly normal ranges.
I feel lously though with almost every symptom of hypothyroidism and
I do have a goiter which started all of the evaluation on this. I
think that it is getting bigger but it might just be my imagination.
I am going to see a new endocrinologist tomorrow but I want to make
sure I am informed and know the right questions to ask. Does anyone
have any suggestions or know of anything I should ask. I have a
friend who has Hashimoto's disease. Does this sound possible for me?
If someone could shed some light on this I would appreciate it!!
Thanks,
Jill

Hello. I have been taking Armour thyroid for the last 2 years and
generally felt ok. I recently got a new doc and he ran the usual
bloodwork on me. My TSH was good, nice and low. But he said my Free
T4 was low also, being at .58. He immediately took me off the Armour
and put me on levoxine. By the 5th week I noticed a weight gain.
thinking this was around Xmas I didn't think too much about it. Well,
now it's getting worse. I have gained 15lb in 2 weeks. This is not
about food. This was what my body was doing before I started taking
the thyroid meds. anyone have any idea what's going on? I have
started taking 1 grain Armour and .1 mcg of the levoxine the last
couple of days. If i get any bigger I will have to buy another larger
size in all my clothes. This is way creepy. thanks Julie

Well takes up to 2 months to see a change in blood
work..what was your TSH?
Wendy-Memphis

Happy New Year everyone!
I am wondering how long I should expect before Levoxyl should show up
in my test results. Parallel to that, how long should it take before
any positive or negative results should come in terms of feeling
better or not?
Thanks a ton!
Ari

In a message dated 01/01/2002 8:17:09 AM Pacific Standard Time, manoj@... writes:

Can someone please tell me the difference between T 4 and T3? Does a normal
T4 level indicate the need to test for T3?

Manoj,
Here is an explanation from "Doctor's Manual for Wilson's Thyroid Syndrome." I tried to omit some of the technical stuff concerning precisely how T4 is converted to T3 and RT3 but if you want more, I can quote the whole section. I hope this answers your question.
"The hypothalamus stimulates the pituitary gland to produce Thyroid Stimulating Hormone (TSH). TSH stimulates the thyroid gland to produce T4 (thyroxine) which is the raw material or precursor used to make the active thyroid hormone T3. T4 is also converted to Reverse T3 which is physiologically inactive.
"T4 is not the physiologically active hormone and needs to be converted by an enzyme called 5'-deiodinase to become the active hormone T3, or liothyronine. At least 84% of the body's daily production of T3 is produced in this way, not in the
thyroid gland but in the tissues of the body (liver, kidney, etc.).
"T3 is the physiologically active thyroid hormone and is four times more potent, and three times shorter acting than T4. T3 is what goes to all the cells in the body and tells them how fast to operate and that determines the body temperature. 5' deiodinase has two jobs. It converts T4 to T3 and it converts RT3 to T2. 5 deiodinase (as opposed to 5' deiodinase) is the enzyme that converts T4 to RT3.
"T4 accounts for most of what is produced in the thyroid gland itself (about 10 times less T3 and about 30 times less RT3 is produced than T4. Most T4 is converted to RT3 than to T3. The fact that serum RT3 concentrations are lower than those of T3 reflects its more rapid metabolic cleaarance.
"T4 to T3 conversion is inhibited by stress, acute and chronic illness, fasting, glucocorticoids, propylthiouracil, and other things. When the body shunts T4 away from T3 and more toward RT3, the cells of the body slow down. This is done to conserve energy and that's normal. After the stress has passed, the metabolism is supposed to come back up to normal but sometimes it doesn't."
Doctor's Manual for WTS, pp. 20-23.
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html

Can someone please tell me the difference between T 4 and T3? Does a normal
T4 level indicate the need to test for T3?
Thanks
Manoj

Symptoms will remain for a while. Depending on how high your TSH was. What dosage were you takeing?

jewlzer <jewlzer@...

Hi,
I was prescibed levoxyl. The symptoms still remained even though I
was taking the replacement.
Jewlzer

that low body temperature is an output indicator that the body's
thyroid system (as opposed to only the thyroid gland) is
dysfunctional. He has a whole list of symptoms that accompany low
body temperature. They include most, maybe all, the well known hypo-
thyroid symptoms including weight gain and even sometimes, weight
loss. (I've had both--severe weight loss when I was first
hypothyroid two decades ago and now, about 30 pounds of weight gain
over the last ten years that has been finally shifting away a little
at a time.)
improper tissue conversion of T4 to T3. That under a period of
extreme stress, some folks' systems get confused and begin to convert
T4 to RT3 both of which bog down in the tissues making the person
sluggish, confused, tired, cold, sleepy, mentally slow, etc. All
those maddening things! Yet, interestingly enough, often the blood
tests (All hail the almighty TSH test! Gag.) read normal! Also, the
patient sometimes feels just as crummy or worse (my story again!) on
T4 medicines or T3/T4 combos, so traditional low thyroid therapy
seems a failure.
tissues cleared out and to get life giving T3 to the starved cells.
Instead of Cytomel, which is instant release T3 (and fairly nasty to
take as it causes heart palpitations, heartburn, sweating, etc.) he
used pure T3 mixed at the compounding pharmacy with a timed-release
agent so it goes slowly into the body over 12 hours. (Beautiful!
elegant! in my editorial opinion!) He figured out a method of
delivering the T3 in just the right amount at just the right time to
gradually begin restoring the patient's thyroid system. Lots of
people who've done his protocol have been able to walk away from any
thyroid medicine once their systems were restarted! Now, that's
pretty amazing, eh? Some, who truly had some thyroid gland
dysfunction were able to significantly reduce the amount of thyroid
medicine they needed on a daily basis and feel better on it than they
had for years on higher doses! A few people didn't benefit at all
and needed other treatment.
the treatment (which I was wary of at first because all the
traditional docs say there is no such thing!), I think anyone who has
signs of sub-clinical hypothyroidism owes it to themselves and their
future health to at least research it and, if at all possible, give
it a try. They may just do themselves a big favor and end up feeling
tons better for not much more money than it would take to go to a
traditional doc with whom they are just eaking out survival and still
feeling crummy.
because it is changing my life and I'm feeling better for the first
time in two decades! Tight now I'm on hiatus from any thyroid
medicine between cycles and I feel better on NO thyroid medicine than
I ever did on the highest dose of Synthroid or Armour my old docs
would let me have! And this after only two cycles of the medicine
protocol! In spite of what traditional medicine says, it's attempt
to put out bad press about Dr. Wilson and Wilson's Thyoid Syndrome,
I'd say the 'proof is in the pudding, don't knock it until you've
tried it!'
website: www.wilsonsthyroidsyndrome.com. You can also order a book
there, but it has pretty much the same info the website has. Get the
book only if you're giving it to someone who doesn't have access to
the internet. They have a kit you can order that has materials to
give to a doctor you think might be open to treating for WTS. I
would definitely recommend anyone who decides to do the treatment
protocol should buy the Doctor's Manual and read it up and down,
cover to cover. It will verse you thoroughly in the whole rationale
and procedure of the WTS protocol. It is easily understood, has lots
of examples and metaphors to make the concepts easy to grasp. I'd
say it is essential for the patient who wants to get the most out of
their T3 medicine treatment.

Hi,
I was prescibed levoxyl. The symptoms still remained even though I
was taking the replacement.
Jewlzer

that low body temperature is an output indicator that the body's
thyroid system (as opposed to only the thyroid gland) is
dysfunctional. He has a whole list of symptoms that accompany low
body temperature. They include most, maybe all, the well known hypo-
thyroid symptoms including weight gain and even sometimes, weight
loss. (I've had both--severe weight loss when I was first
hypothyroid two decades ago and now, about 30 pounds of weight gain
over the last ten years that has been finally shifting away a little
at a time.)
improper tissue conversion of T4 to T3. That under a period of
extreme stress, some folks' systems get confused and begin to convert
T4 to RT3 both of which bog down in the tissues making the person
sluggish, confused, tired, cold, sleepy, mentally slow, etc. All
those maddening things! Yet, interestingly enough, often the blood
tests (All hail the almighty TSH test! Gag.) read normal! Also, the
patient sometimes feels just as crummy or worse (my story again!) on
T4 medicines or T3/T4 combos, so traditional low thyroid therapy
seems a failure.
tissues cleared out and to get life giving T3 to the starved cells.
Instead of Cytomel, which is instant release T3 (and fairly nasty to
take as it causes heart palpitations, heartburn, sweating, etc.) he
used pure T3 mixed at the compounding pharmacy with a timed-release
agent so it goes slowly into the body over 12 hours. (Beautiful!
elegant! in my editorial opinion!) He figured out a method of
delivering the T3 in just the right amount at just the right time to
gradually begin restoring the patient's thyroid system. Lots of
people who've done his protocol have been able to walk away from any
thyroid medicine once their systems were restarted! Now, that's
pretty amazing, eh? Some, who truly had some thyroid gland
dysfunction were able to significantly reduce the amount of thyroid
medicine they needed on a daily basis and feel better on it than they
had for years on higher doses! A few people didn't benefit at all
and needed other treatment.
the treatment (which I was wary of at first because all the
traditional docs say there is no such thing!), I think anyone who has
signs of sub-clinical hypothyroidism owes it to themselves and their
future health to at least research it and, if at all possible, give
it a try. They may just do themselves a big favor and end up feeling
tons better for not much more money than it would take to go to a
traditional doc with whom they are just eaking out survival and still
feeling crummy.
because it is changing my life and I'm feeling better for the first
time in two decades! Tight now I'm on hiatus from any thyroid
medicine between cycles and I feel better on NO thyroid medicine than
I ever did on the highest dose of Synthroid or Armour my old docs
would let me have! And this after only two cycles of the medicine
protocol! In spite of what traditional medicine says, it's attempt
to put out bad press about Dr. Wilson and Wilson's Thyoid Syndrome,
I'd say the 'proof is in the pudding, don't knock it until you've
tried it!'
website: www.wilsonsthyroidsyndrome.com. You can also order a book
there, but it has pretty much the same info the website has. Get the
book only if you're giving it to someone who doesn't have access to
the internet. They have a kit you can order that has materials to
give to a doctor you think might be open to treating for WTS. I
would definitely recommend anyone who decides to do the treatment
protocol should buy the Doctor's Manual and read it up and down,
cover to cover. It will verse you thoroughly in the whole rationale
and procedure of the WTS protocol. It is easily understood, has lots
of examples and metaphors to make the concepts easy to grasp. I'd
say it is essential for the patient who wants to get the most out of
their T3 medicine treatment.

What medication were you on Jewlzer?

Dr. Wilson came up with this about ten years ago. He suggested that low body temperature is an output indicator that the body's thyroid system (as opposed to only the thyroid gland) is dysfunctional. He has a whole list of symptoms that accompany low body temperature. They include most, maybe all, the well known hypo-thyroid symptoms including weight gain and even sometimes, weight loss. (I've had both--severe weight loss when I was first hypothyroid two decades ago and now, about 30 pounds of weight gain over the last ten years that has been finally shifting away a little at a time.)
WTS people say that the thyroid system dysfunction comes from improper tissue conversion of T4 to T3. That under a period of extreme stress, some folks' systems get confused and begin to convert T4 to RT3 both of which bog down in the tissues making the person sluggish, confused, tired, cold, sleepy, mentally slow, etc. All those maddening things! Yet, interestingly enough, often the blood tests (All hail the almighty TSH test! Gag.) read normal! Also, the patient sometimes feels just as crummy or worse (my story again!) on T4 medicines or T3/T4 combos, so traditional low thyroid therapy seems a failure.
Dr. Wilson experimented with pure T3 to get the bogged down body tissues cleared out and to get life giving T3 to the starved cells. Instead of Cytomel, which is instant release T3 (and fairly nasty to take as it causes heart palpitations, heartburn, sweating, etc.) he used pure T3 mixed at the compounding pharmacy with a timed-release agent so it goes slowly into the body over 12 hours. (Beautiful! elegant! in my editorial opinion!) He figured out a method of delivering the T3 in just the right amount at just the right time to gradually begin restoring the patient's thyroid system. Lots of people who've done his protocol have been able to walk away from any thyroid medicine once their systems were restarted! Now, that's pretty amazing, eh? Some, who truly had some thyroid gland dysfunction were able to significantly reduce the amount of thyroid medicine they needed on a daily basis and feel better on it than they had for years on higher doses! A few people didn't
benefit at all and needed other treatment.
No, WTS treatment isn't for everyone, but after my experience with the treatment (which I was wary of at first because all the traditional docs say there is no such thing!), I think anyone who has signs of sub-clinical hypothyroidism owes it to themselves and their future health to at least research it and, if at all possible, give it a try. They may just do themselves a big favor and end up feeling tons better for not much more money than it would take to go to a traditional doc with whom they are just eaking out survival and still feeling crummy.
I'm not affiliated with the WTS people in any way. I'm just a fan because it is changing my life and I'm feeling better for the first time in two decades! Tight now I'm on hiatus from any thyroid medicine between cycles and I feel better on NO thyroid medicine than I ever did on the highest dose of Synthroid or Armour my old docs would let me have! And this after only two cycles of the medicine protocol! In spite of what traditional medicine says, it's attempt to put out bad press about Dr. Wilson and Wilson's Thyoid Syndrome, I'd say the 'proof is in the pudding, don't knock it until you've tried it!'
You can do a lot of reading about WTS on their fairly extensive website: www.wilsonsthyroidsyndrome.com. You can also order a book there, but it has pretty much the same info the website has. Get the book only if you're giving it to someone who doesn't have access to the internet. They have a kit you can order that has materials to give to a doctor you think might be open to treating for WTS. I would definitely recommend anyone who decides to do the treatment protocol should buy the Doctor's Manual and read it up and down, cover to cover. It will verse you thoroughly in the whole rationale and procedure of the WTS protocol. It is easily understood, has lots of examples and metaphors to make the concepts easy to grasp. I'd say it is essential for the patient who wants to get the most out of their T3 medicine treatment.
I hope I've answered your questions,
Linda in LA
Wendy, Jewlzer
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html
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In a message dated 12/29/2001 7:49:01 PM Pacific Standard Time, jewlzer@... writes:

Could you tell me what this Wilson thing is??

What can anyone tell me about Wilson's Thyroid Syndrom?

Dr. Wilson came up with this about ten years ago. He suggested that low body temperature is an output indicator that the body's thyroid system (as opposed to only the thyroid gland) is dysfunctional. He has a whole list of symptoms that accompany low body temperature. They include most, maybe all, the well known hypo-thyroid symptoms including weight gain and even sometimes, weight loss. (I've had both--severe weight loss when I was first hypothyroid two decades ago and now, about 30 pounds of weight gain over the last ten years that has been finally shifting away a little at a time.)
WTS people say that the thyroid system dysfunction comes from improper tissue conversion of T4 to T3. That under a period of extreme stress, some folks' systems get confused and begin to convert T4 to RT3 both of which bog down in the tissues making the person sluggish, confused, tired, cold, sleepy, mentally slow, etc. All those maddening things! Yet, interestingly enough, often the blood tests (All hail the almighty TSH test! Gag.) read normal! Also, the patient sometimes feels just as crummy or worse (my story again!) on T4 medicines or T3/T4 combos, so traditional low thyroid therapy seems a failure.
Dr. Wilson experimented with pure T3 to get the bogged down body tissues cleared out and to get life giving T3 to the starved cells. Instead of Cytomel, which is instant release T3 (and fairly nasty to take as it causes heart palpitations, heartburn, sweating, etc.) he used pure T3 mixed at the compounding pharmacy with a timed-release agent so it goes slowly into the body over 12 hours. (Beautiful! elegant! in my editorial opinion!) He figured out a method of delivering the T3 in just the right amount at just the right time to gradually begin restoring the patient's thyroid system. Lots of people who've done his protocol have been able to walk away from any thyroid medicine once their systems were restarted! Now, that's pretty amazing, eh? Some, who truly had some thyroid gland dysfunction were able to significantly reduce the amount of thyroid medicine they needed on a daily basis and feel better on it than they had for years on higher doses! A few people didn't
benefit at all and needed other treatment.
No, WTS treatment isn't for everyone, but after my experience with the treatment (which I was wary of at first because all the traditional docs say there is no such thing!), I think anyone who has signs of sub-clinical hypothyroidism owes it to themselves and their future health to at least research it and, if at all possible, give it a try. They may just do themselves a big favor and end up feeling tons better for not much more money than it would take to go to a traditional doc with whom they are just eaking out survival and still feeling crummy.
I'm not affiliated with the WTS people in any way. I'm just a fan because it is changing my life and I'm feeling better for the first time in two decades! Tight now I'm on hiatus from any thyroid medicine between cycles and I feel better on NO thyroid medicine than I ever did on the highest dose of Synthroid or Armour my old docs would let me have! And this after only two cycles of the medicine protocol! In spite of what traditional medicine says, it's attempt to put out bad press about Dr. Wilson and Wilson's Thyoid Syndrome, I'd say the 'proof is in the pudding, don't knock it until you've tried it!'
You can do a lot of reading about WTS on their fairly extensive website: www.wilsonsthyroidsyndrome.com. You can also order a book there, but it has pretty much the same info the website has. Get the book only if you're giving it to someone who doesn't have access to the internet. They have a kit you can order that has materials to give to a doctor you think might be open to treating for WTS. I would definitely recommend anyone who decides to do the treatment protocol should buy the Doctor's Manual and read it up and down, cover to cover. It will verse you thoroughly in the whole rationale and procedure of the WTS protocol. It is easily understood, has lots of examples and metaphors to make the concepts easy to grasp. I'd say it is essential for the patient who wants to get the most out of their T3 medicine treatment.
I hope I've answered your questions,
Linda in LA
Wendy, Jewlzer
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html

Look to http://drlowe.com http://Wilsonssyndrome.com./
https://www.endfatigue.com All of these sites talk about
sub-clinical hypothyroidism. My recommendation would be to read,
read, read make sure that the endo that your Dr sends you to will
treat these "hidden" hypo with T3 or at least Armor thyroid. If they
will not look at nutrition and parasite/yeast/bacterial possibilities
get your doc to find someone who will. I personally know that Dr Lowe
will work with your doc to treat you.
Read, research and go back with LOTS of documentation from
these sites and others too. There is something going on and there are
people who suffer needlessly because of Drs relying only on blood
tests and will not treat you if your tests are normal.
It sounds like a lot of people on this group are being
treated properly and they may have other suggestions. Drs Lowe and
Teitelbaum protocols are ones I have seen work for fibromyalgia
which is often untreated subclinical hypothyroidism. I have seen
John Lowe speak several times and will be seeing him again in Feb.
good luck with your quest
Mary Jo
--
anomie
"I would much rather be some ones fun, well used toy than to be an
expensive, impressive collection that they just have to dust"
Winter Solstice 2001
NAMTPT web site
http://www.myofascialtherapy.org

What can anyone tell me about Wilson's Thyroid Syndrom?
I was diagnosed with hypothyroidism about 3 years ago..
I had it for quite some time without even knowing what was wrong with
me. Until I wound up being rushed to the hospital by ambulance..
For the past 3 weeks I have been w/out medication and i am feeling
awful! Reason being i have NO health insurance and cannot see a
doctor unless I go to the emergency room when after my medication
runs out and I start to getting sick again as I am as I type this.
It's the ONLY way I have been able to get medication..
You see the guy I married is a loser and just doesn't give a ****! I
am VERY stressed... I am trying to divorce this loser now!
He thinks as long as I am sick, I can't leave....I am not strong
enough!!! Very psychologically abusive situation... I am losing
it!!!!!!
(I can't beleive i just wrote that on a messageboard) Felt good to
see it in text though :)~~

Could you tell me what this Wilson thing is??

Thanks,

Wendy

Thank you so much, Linda. I subscribed to the Wilson's newsletter
and received an e-mail with instructions on monitoring my body
temperature. So, I'm hopeful right now. I will also request a copy
of my test results. My doctor did indicate that he would look into
referring me to an endocrinologist for further tests (hopefully one
is covered under my insurance.) Do you think that this is the way to
go, or should I just switch doctors to one that is listed under the
Wilson's site? Thanks again.

Heh. See my previous post.

yup.

Medical faculty at Norway Technical Scientific University released the
report of this study in Norway yesterday and today in the Danish BT Newspaper:
====================
Lightprodukter, der indeholder sødestoffet aspartam, mistænkes for at dræbe
hjerneceller. Det er særligt de områder i hjernen, som bruges ved
indlæring, der påvirkes, og derfor bør særligt børn undgå lightprodukter.
Det er konklusionen i en hovedopgave fra det medicinske fakultet ved Norges
teknisk-naturvidenskabelige universitet.
M. Ebdrup, B.T., 13
====================
TRANSLATION :
Light products containing the sweetener aspartame, is suspected of killing
brain cells. Especially the areas in the brain used for learning are being
affected, and therefore especially kids should avoid light products.
That is the conclusion in a main assignment from the medical faculty at
Norway technical-scientific University.
====================
This has been known in the US for years. The famed Dr. John Olney who
founded the field of neuroscience called excitotoxicity did the studies on
aspartate, (40% of aspartame), which showed it caused lesions in the brains
of mice. Neurosurgeon Russell Blaylock, M.D., Excitotoxins: The Taste That
Kills, www.amazon.com said: "At least one of the components found in
aspartame called aspartic acid is a known excitotoxin that can result in
the death of special neurons within the nervous system. There are two
conditions, often present in the same situation, that increase
vulnerability to the brain toxic effect: young age (an immature brain) and
hypoglycemia. It is known that the human brain does not reach its full
development until age sixteen. Because these neural pathways are still
undergoing development, and the protective mechanisms are immature, the
child's brain is especially vulnerable. We also know that low blood sugar
increases this toxicity significantly. The most vulnerable part of the
brain to this excitotoxicity is the hippocampus of the temporal lobes, a
part of the brain concerned with learning and memory, as well as emotional
functions. It is for these reasons that aspartame should especially be
avoided in young children." :
H. J. Roberts, M.D., who declared Aspartame Disease to be a global plague
has now published a medical text titled Aspartame Disease: An Ignored
Epidemic, www.aspartameispoison.com On page 506 he discusses the
deterioration of intelligence and learning skills in aspartame reactors,
as evidenced by slippage in school performance. He says "It may take a
generation or longer to ascertain the full extent of this problem." On Page
561 he discusses comparable problems with memory among, younger aspartame
reactors and how they have been attributed to premature aging.
He says this ties into the acceleration of Alzheimers Disease. "The need
for considering exposure to aspartame and other neurotoxins before making a
diagnosis of premature aging is paramount." . In an earlier book he also
discusses. Dr. Roberts said:
"I have observed severe intellectual deterioration associated with the use
of aspartame products. It was usually manifest as great difficulty in
reading and writing, obvious problems with memory and grossly impaired
orientation to time, place and person. In some patients these features
cleared slowly after the avoidance of aspartame."
Ralph Walton, M.D., Psychiatrist, Chairman of the Center for Behavioral
Medicine: "We have known for years that when aspartame is ingested with a
carbohydrate rich meal the usual physiologic increase in tryptophan is
blocked, while brain phenylalanine and tyrosine concentrations are
increased. These changes in amino acid blocked neurotransmitter precursors
could, I believe, alter indoleamine/catechloamine balance, and thus have a
profound effect on mood and cognition....depressed mood, anxiety,
dizziness, panic attacks, nausea, irritability, impairment of memory and
concentration."
James Bowen, M.D. told the FDA years ago "Every known metabolite of
aspartame is of marked or questionable toxicity and patently unsafe for
human use." In Aspartame Murders Infants he said: "At every point in the
fertility process aspartame (NutraSweet/Equal/Spoonful/Canderal/Benevia,
etc.) destroys. ....It ruins female sexual response and induces male sexual
dysfunction. Beyond this, aspartame disrupts fetal development by aborting
it or inducing defects. And if a live child is born aspartame may have
heinously damaged the DNA of the baby cursing future generation." See his
paper on Sperm Warfare.
We are now taking case histories for class action on aspartame starting
with seizures, brain tumors, eye deterioration and blindness, etc. Those
participating in the US should send their case history and contact
information to Bettym19@... or address below, to be forwarded to
attorneys. This includes all states and we are especially interested at
this time with New York, Connecticut and New Jersey.
A pivotal study that ended up approving aspartame was SC-18862, a 52 week
oral toxicity infant monkey study. Seven infant monkeys were fed aspartame,
five had grand mal seizures and 1 died. The seizureswere attributed to high
serum phenylalanine (50% of aspartame) levels. Four types of seizures
triggered by aspartame are listed on the FDA report. Aspartame also
triggered astrocytomas and pituitary adenomas as well as many other types
of tumors. While the FDA did ask for a grand jury investigation and
indictment both U.S. Prosecutors hired on with the defense team and the
statute of limitations expired. For 16 years the FDA refused to approve it.
The manufacturer then hired Donald Rumsfeld, now Secretary of Defense, who
said he would call in his markers and get it approved. See UPI
investigation. President Reagan appointed Dr. Arthur Hull Hayes who
over-ruled a Board of Inquiry who said aspartame was never proven safe and
triggered brain tumors and could not be approved. He then went to work for
the PR Agency of the manufacturer and has refused to talk to the press ever
since.
The wood alcohol or methanol in aspartame converts to formaldehyde and
formic acid in the retina of the eye and destroys the optic nerve. In l986
the Community Nutrition Institute in Washington, D.C. petitioned the FDA to
ban aspartame because of the blindness and seizures, but they refused.
Today we are faced with a global plague. Aspartame is a drug that interacts
with most drugs used to treat the problems it triggers as outlined in Dr.
Roberts medical text, from Dilantin for seizures, cardiac medication for
the irregular heart rhythm to antidepressants used to treat the psychiatric
and behavioral problems. It even interacts with insulin, and can
precipitate diabetes.
Aspartame is also a chelating agent and chelates the aluminum from the can
and the mercury from your teeth. It also triggers polychemical sensitivity
syndrome sensitizing the victim to even other toxins and GM products. Four
support groups are on line and can be accessed from www.dorway.com where
you will find the reports mentioned in this note.
Mrs. Betty Martini, Founder, Mission Possible International, 9270 River
Club Parkway, Duluth, Georgia 30097, USA, 770 242-2599 www.dorway.com
Aspartame Toxicity Center, www.holisticmed.com/aspartame

Hello. I've struggled with weight all my life and have recently
learned about hypothyroidism. After reading about it and seeing all
the symptoms, I feel that I have this condition. I have tremendous
difficulty losing weight, gain weight easily, am susceptible to cold
weather, have dry skin, am tired regularly, have frequent headaches,
frequent constipation, and difficulty concentrating. I took my
temperature immediately upon waking up and had a temperature of
97.3. I recently went to my doctor to discuss this and had bloodwork
done. He informed me today that my thyroid tests were fine. AFter
discussing this further, he said that he would look into referring me
to an endocrinologist. I am feeling very frustrated right now. I've
read that hypothyroidism can be difficult to detect, but was hoping
that you folks could let me know if I sound like a candidate for
hypothyroidism or am just looking for something that just isn't
there. Thank you.

In a message dated 12/28/2001 6:27:09 AM Pacific Standard Time, bensimo@... writes:

Linda, where did you get your Platinum 30C and was it by prescription?? Thanks,

Ben,
Only a few of the hundreds of homeopathic remedies require a prescription. Platinum does not. So, you can order it at any good homeopathic pharmacy, one that carries more than just the stock of basic, common remedies. Here in LA, a lot of regular pharmacies are morphing into what might be called "wellness pharmacies" where you can order regular prescription medicines but you can also order homeopathics and higher-end, specialized nutritional products. They often have a homeopath on staff or on call for consultation or advisement. If you have something like that where you live, you can likely find out by calling a few local, independent pharmacies and asking around.
Otherwise, I'll give you the toll-free number to call Dolisos, a large homeopathic manufacturer, direct. It costs a little more because you have to pay shipping, but you can get Platinum 30C and most any other remedy in any other potency not requiring a doctor's signature. The number is: 1-800-DOLISOS, or 1-800-365-4767.
Good luck!
Linda in LA
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html

In a message dated 12/28/2001 9:10:28 AM Pacific Standard Time, annah1149@... writes:

It costs a little more because you have to pay shipping, but you can get Platinum 30C and most any other remedy in any other potency not requiring a doctor's signature. The number is: 1-800-DOLISOS, or 1-800-365-4767.

P.S.
I forgot to add that homeopathic remedies are very inexpensive. You'll probably pay $10-12 if you order from Dolisos because of the shippping. But normally at the pharmacy, they cost around $5-7.
L.
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html

They usually start you out low. Key thing is to
remember to take it everyday (at same time) so
eventually they will give you the correct dosage.

Linda, where did you get your Platinum 30C and was it by prescription?? Thanks, Ben

In a message dated 12/26/2001 8:47:17 PM Pacific Standard Time, tk2001@... writes:

It was not my intent to offend you I was only asking for information
regarding your chelation of mercury since I had never heard of
chelating with Platinum.

TK
Apology accepted. I felt I tried to be calm when I read your reply but it seemed rather dismissive to me. I'm sorry if I sounded defensive.
All I know about my use of Platinum was I had this rather large mercury filling removed because my thyroid doc felt it was important. Then I started not feeling well while on a trip and I called my homeopath. She said I was showing signs of mecury toxicity and put that together with the mental and emotional symptoms I was experiencing and came up with Platinum 30C. I was to take it twice a day for two weeks which I started as soon as I got back home. It was only after I'd taken it for a week or so and was feeling much better when she called to see how I was doing and told me it was a cleanser for the mercury.
Linda in LA
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html

My md has me on .12 mcg Synthroid and I still test 10.77 TSH. Is
this typical?

Annah,
It was not my intent to offend you I was only asking for information
regarding your chelation of mercury since I had never heard of
chelating with Platinum.
TK

In a message dated 12/25/2001 8:39:21 PM Pacific Standard Time, tk2001@... writes:

I have never heard of Platinum removing Mercury.

You are free to ignore my report with the remedy. It was only a suggestion.
I only know of

three things that can chelete Mercury : DMPS, DMSA and ALA.

Okay. Your understanding of the action of the above items doesn't invalidate my experience with Platinum, however.
Did your

Homeopath show or give you any reference material on platinum
removing mercury ?

No. Nor do I find any notation of it in the minimal Materia Medica references I have. Yet I have no reason to doubt her skill and knowledge of the action of the remedy. She is extensively trained and very experienced with up-to-date knowledge of the homeopathic remedies and their effects. She has also taken them extensively for ten years so she has the first hand experience proving them in her own body. I've been working with her for over four years and she has never given me anything that hasn't been timely and in my best healing interest. But again, you are free to dismiss my experience with this.
Are there any web references to this ?
Alas and unfortunately, I find the web substandard for any extensive information on homeopathic remedies.
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html

Linda,
I have never heard of Platinum removing Mercury. I only know of
three things that can chelete Mercury : DMPS, DMSA and ALA. Did your
Homeopath show or give you any reference material on platinum
removing mercury ? Are there any web references to this ?
TK

In a message dated 12/22/2001 9:48:37 AM Pacific Standard Time, nb9i@... writes:

I think you're right on about the mercury. Yes, my
problem started with the REMOVAL of the amalgam about 6 years ago.
Two years ago my problem got worse after a new dentist put in an
amalgam post without my knowledge that he was making the post out of
amalgam. I got real sick and he had to remove the post and put in
another material. Too late, my weight had dropped and now it won't
come back. I am trying to get the mercury out with a "raw"
diet....many greens and nuts, plus supplements like MSM and other
herbal "chelators". IV chelation is out as well as other expensive
techniques. I just don't have the funds for that stuff.

Hi,
I too, recently had an old mercury filling replaced and learned at that time that Platinum, a homeopathic remedy, cleanses mercury. My homeopath put me on a low dose, 30C for a couple of weeks. Seemed to work for me.
Linda in LA
"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey
http://geocities.com/llheinsohn/index.html